Princess Roo’s GI Plan

I mentioned yesterday that we have a checklist of things that are going to happen before Roo’s GI seriously considers a feeding tube. For those who are curious, I’ll tell you what the search for answers to Roo’s chronic abdominal pain entails. If we don’t find the answer to get her eating (and growing) again somewhere in the middle of all of this, the tube will be the result. I’m just trusting that God has all of this under control and it will end in the way that’s best for Roo.

First, we had blood drawn to test her thyroid and growth hormone levels. While we wait for those results, which will take a couple of weeks, we’re trying a medication that will cause her stomach to empty faster. Hopefully, that will end the early satiety she experiences and help her to eat more. Around the middle of the month, I’ll call to report on the effects of the medicine on her eating habits, and I’ll receive the lab results.

If we don’t find any answers in step one, step two is to do some other testing—possibly to re-scope her and do biopsies again to make sure we’re not missing anything. She had a scope last summer before her ENT surgery. Everything looked fine then, but things can change.

If everything checks out in step two, but she’s still not eating/growing/gaining weight, that’s when the tube discussion becomes serious and will most likely become a reality.

Those are the facts. The emotions and feelings about them are more complex. Roo is actually excited about the testing. When I told her she was going to have a blood draw, she said, “Yay! They’re going to find out why my tummy hurts!”

How am I feeling? It depends on when you ask. At any given moment, I am frustrated, relieved, resigned, angry, or sad. The bottom line is that I want some answers for my baby girl.

How are you coping with some challenging situations you’re facing?

Photo credit: Jennifer A. Janes

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13 Responses to Princess Roo’s GI Plan

  1. Maggie says:

    Wow. I am renewing my prayers for your family. As hard as it is to overcome the challenges cerebral palsy bring, at least we know what we’re facing (most of the time). If there is ever anything I can do for you in addition to prayer, you have but to call.

  2. Maggie says:

    Sorry, that should have been *brings.

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  4. Kimberly Ehlers says:

    Thinking and praying for all of you. Thanks so much for sharing this – it’s good to know exactly how we can pray.
    Take care, my friend!

  5. Amanda Jones says:

    Praying for you. Many blessings in this time…

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  7. Laura says:

    Found your blog through Laurie Wallin’s blog knee deep in a potty party of my own. Homeschooling multiple kids? Check. Special needs? Check. Completely in over my head? Check. :) I appreciate your encouragement at Laurie’s blog!

    • Hi, Laura! It’s nice to meet you. I was having a potty party myself today, and it did me some good to read that post too. It’s been a while since I wrote it, and it was a great reminder. I’m doing better tonight. How are you?

      Please e-mail or contact me via Facebook or Twitter anytime. I’d love to get to know you better!

  8. Pingback: My Week in a Word: Fun | Jennifer A. JanesJennifer A. Janes

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